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Clinical Adaptation of the Spinal Cord Injury Quality of Life Psychosocial Measures

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This research was funded by from the  and concluded in April, 2020.

The purpose of this study was to validate the items of the Spinal Cord Injury– Quality of Life (SCI-QOL) assessment and improve how people use the SCI-QOL scores to describe different levels of social and emotional experiences among individuals living with a spinal cord injury (SCI).

The SCI-QOL assessment measures physical-medical, physical functioning, emotional and social health in people with SCI.

The goal was to develop a tool that health care professionals and individuals with SCI can use to more accurately assess what the impact is on an individual’s well-being and what their social and emotional outcomes are over time as a result of medical care, medications, or treatments received.

Co-principal investigators on this grant were Allen Heinemann, PhD, Director, Center for Rehabilitation Outcomes Research, and Linda Ehrlich-Jones, RN, PhD, Associate Director, Center for Rehabilitation Outcomes Research and Research. 

Publications

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Heinemann AW, Nitsch KP, Gracz K, et al. . Archives of Physical Medicine and Rehabilitation. May 2022;103(5S):S67-S77. doi:10.1016/j.apmr.2021.05.010

Nitsch KP, Stipp K, Gracz K, Ehrlich-Jones L, Graham ID, Heinemann AW. . The Journal of Spinal Cord Medicine. Nov 2021;44(6):940-948. doi:10.1080/10790268.2020.1712893

Heinemann AW, Nitsch KP, Ehrlich-Jones L, et al. . J Contin Educ Health Prof. Spring 2019;39(2):103-111. doi:10.1097/CEH.0000000000000249

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